Adding insult to tragedy:
Robin and Dan Marx of Cary are in a similar situation. Their 13-year-old son, Aidan, has a form of muscular dystrophy, and they receive $72,000 a year to pay for nursing aides for him as well as a modified van and alterations to their home to accommodate his wheelchair.
"This is a 350-pound wheelchair. You can’t just put in a car and drive around with it," Robin Marx said. Changing CAP-C would cut the family's Medicaid benefits by $40,000 a year.
Although it appears DHHS is re-evaluating this move after the negative feedback from families who would suffer from it, why is such feedback necessary? I'm sure somebody at DHHS could have made these calculations and predicted these horrific outcomes; if they couldn't or didn't they have no business managing these resources. What if nobody had spoken up? Is that now the way to gauge the effects of policy changes? The term "mismanagement" comes to mind, but I have a feeling they (DHHS) knew good and well the suffering that would result, and were merely gauging the public relations damage they'd have to deal with.